11.27.2016

Spoilt

Sorry for the lack of blogs. As usual, I have lots of posts to write and things to tell you about but just haven't had the time or energy to to get them down on paper, ( more accurately screen!). 

I wrote this post on my 5 year anniversary with new lungs, so you can read more on my feelings there. I was throughly spoilt and while it seems a little indulgent or boasting totals about it here, I want to let everyone know how much I appreciated the things they did because I genuinely didn't expect anything! 


It all started with a delicious meal and cocktails at one of my favourite restaurants Joe Allen's in Covent Garden with my best friend Pippa! We had such a lovely day and she bought me some amazing, Disney related gifts. 

The next thing to happen was flying off to New York (dedicated blog post coming soon). I won't talk too much about it here but wanted to thank our amazing hotel. Not only was it a gorgeous hotel but the staff knew that it was my anniversary and surprised me with prosecco, treats and everything pictured below. It was such a kind gesture, the manager who brought it all up was the loveliest lady who always had a hug for us when we saw her and I just thought it was such a great surprise and above and beyond. A real touching moment. If you go to NY I STRONGLY recommend the Hilton Residence Inn Midtown East. Fantastic hotel and excellent staff.


When I arrived home feeling pretty jet lagged and sore, this was waiting for me which was again so genuinely kind and overwhelming. My mum had asked my cousin to get me a 5 balloon for when I got home. I had lots of post and a bag of presents from my aunt, all of which were so personal and just so kind.


I had loads of cards, again really personal, picked and written with love.  Below is me with the bear my cousin Emma bought me the day I had my transplant, and my beautiful flowers from my other cousin Marie. Spoilt! 

Biased but my favourite present is this drawing of Phantom from my parents. I absolutely adore it and can look at it for ages seeing little details I missed before or marvelling at the skill involved in creating it. The lady who drew it for me was actually in Phantom while she drew it. Her Twitter is @joannaohare she is a lovely and incredibly gifted artist and performer. Thank you Joanna! 


This present was so thoughtful and I just love it. I have a big love for beauty and the beast (you may have noticed a theme in my gifts this year!) and when Emma knew it was my anniversary coming up she knew exactly what to get me! I'm saving it and my phantom picture until I revamp my bedroom and can put them in the perfect places. 

Another great one was this make up bag and a gorgeous handmade card from my friend Bianca, it had such a lovely message that I cried a little bit (with a couple of cards in fact). 


 One of my aunts presents was a nice afternoon tea.set out on cute little picnic tables. It was the icing on the cake 😉 to celebrate such a big anniversary. Only 50% of people reach their 5 year anniversary post transplant and I am very lucky. There are plenty of friends who weren't as lucky.

All in all I was a very spoilt girl and really appreciated everyone who made the effort to celebrate with me and wish me a good day. I felt truly loved and cared for. Thank you all so much.


New York blog coming soon 😘


10.30.2016

Just to let you know...

Hello! 

A very short blog just to let you know all is ok! I had a lovely holiday at Centre Parcs and then in New York! An amazing 5 year anniversary. However I struggled a lot with pain and fatigue while in New York and I think the last few weeks of packing, travel, hospital appointments, cake work, singing practise etc has just worn me out completely. 
I'm really tired and struggling to get things done so I promise lots of blogs are on the way but bear with me getting them up. 

Thank you! Hope all of you are well and enjoying the gorgeous Autmn weather. Xx

10.07.2016

Thank you

Today marks 5 years post double lung transplant. Simultaneously,  it seems both so long ago, and just like yesterday. I can remember so clearly waking up to the call that day and the events up until surgery. 

I cannot begin to encapsulate the last 5 years into this one post; it's not always been easy (it still isn't), there have been huge triumphs and horrible lows. 

However, the overwhelming emotion today is gratitude. But who exactly am I thanking? Well, my parents who were with me every step of the way, meaning I was never alone. My medical teams who kept me going from birth to now but particularly the amazing staff at Harefield whose expertise and genuine kindness got me through. To my co-ordinations who delivered the life changing news and supported me through it all. To my incredible donor family who are the bravest, selfless, inspiring people, the people who through all their grief and torture gave me a chance to live again. And finally to my donor, you literally saved my life and I will do everything I can to make you proud and use your gift well.

To all of you I want to say...

Thank you for the 5 extra birthdays and Christmasses with my family. All the other family weddings, births, celebrations and casual days. For hugs with my mum, getting my dog who I absolutely adore, the 'I love you's' , the nights snuggled in bed, and every moment in between.

Thank you for allowing me to walk out of my front door. Just walk out, without oxygen, a wheelchair, and extreme breathlessness. To walk for a bus, get on a train independently again.

Thank you for all the days I've turned my face to the sunshine felt it warm my face and been glad to be alive.

Thank you for all the friends I would never have known were it not for my transplant. Being able to meet my niece, and my cousins children. The friendships and extra days that would never have happened if it weren't for all of you.

Thank you for the ability to take a deep breath and know how lucky I am.

Thank you for allowing me to see my potential, completing a half marathon and graduating, and to feel I can continue to strive for more.

Thank you for allowing me to start travelling and conquering my fears surrounding it. To Paris, Disneyland, Florida, NewYork....

Thank you for the hundred little things I do each day that barely register sometimes but that I could never have done without you.

Thank you for letting me follow my dreams, like my work experience at Les Miserables, my drama course, and the chances to perform which have made my heart soar with happiness.

Thank you for saving my parents the grief and trauma that would have been losing their youngest daughter.

Thank you for my future and for every single second that has led to this moment. 

Thank you for my life.



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